Welcome to The Histio CURE Foundation website!
The Histio CURE Foundation was founded in April of 2011 with the sole purpose of infusing more dollars into medical research in the pursuit of finding a cure. We are a 100% volunteer organization that is dedicated to the idea that focused medical research will make a difference.
In 2011, we put in place a solid foundation for the organization. Between the great experience of our board members and their contacts, we quickly received our 501(c)(3) tax exempt approval. Our quick start allowed us to focus early on fundraising. With the help of many events around the country, we were able to bring in $150,000 in donations and we ended the year by making a $150,000 grant to Dr. Ken McClain and Dr. Carl Allen of the Texas Children’s Hospital’s Histiocytosis Program to support their exciting work on identifying the genetic mutations and markers related to Histiocytosis.
In 2012, our momentum continued. We expanded our fundraising activities and promoted “Spit for A Cure.” We took aim at fully funding the estimated $1.5M cost of this effort to better understand the genes associated with Histiocytosis. At the end of 2012, we were able to make a $250,000 grant to Dr. Ken McClain and Dr. Carl Allen of the Texas Children’s Hospital’s Histiocytosis Program towards this effort.
As we leave 2013, we have continued to see growth. We recently granted another $300,000 to Texas Children's Hospital's Histiocytosis Program. That makes a total of $700,000 donated over our short existence! Our primary goal remains crystal clear – finding a cure for all Histiocytic disorders by 2021. That is a big challenge, and we will only get there by combining our forces and focusing our efforts.
Cultural anthropologist Margaret Mead once said, "Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it's the only thing that ever has." Together, we are that small committed group. Together we will change the lives of those we love affected by Histiocytosis. Please join us. Together we will FUND a cure!
Ron Bechtold & Lucus Gamble
Co-Chairs, The Histio CURE Foundation
Toby Hausman, Secretary for The HCF and parent of HLH-survivor, Brooke, helped to launch Hike For A Cure in Texas. Toby and his wife, BJ, worked closely with Ron and Colleen to get the Texas Hike up and going. The community created as histio families come together for the Hike is truly amazing. Below Toby offers some of his thoughts on the Hike.More...