Please join us the for the 8th annual A Rare Affair. This year the Rare Affair crew is mixing things up with a crawfish boil at Karbach Brewing Company. All proceeds benefit histiocytosis research at Texas Children’s Hospital. Click HERE to view ticket prices and sponsorship packages. Please also use this form if you prefer to register for Bugs & Brews by mail. Otherwise, please use the online event registration by clicking HERE. Thank you for your generous support. Together we will fund a CURE.
Will cried out in pain in the middle of the night. The next morning he woke up screaming and could barely walk. After MRIs, PET scans, and biopsies, he was diagnosed with multisystem Langerhans Cell Histiocytosis (LCH). The tumor in his spine caused his vertebra to fracture, completely collapsing down. Thanks to the medical research supported by the Histio CURE Foundation, Will is now in remission midway through his year of chemotherapy. However, Will is not out of the woods yet. Current treatment regimens are less than perfect and for those patients who do respond, more than one out of three will relapse. To find a cure for Will and other LCH patients, we will be running the Walnut Creek Half Marathon on December 9th. Please help our cause by sponsoring our run or participating with us!
Please join us for our annual gathering of Histio families as we take on two mighty challenges: raising $100,000 to fund research towards a cure for Histiocytosis, and hike from Yosemite Valley to “Histio Lookout” on the Clouds Rest trail (with Clouds Rest as a bonus challenge)! Both challenges are hard work. Curing Histiocytosis is much harder. Step by step we can do it!
Event Registration & More Details HERE
2017 Histio Family Day Topics:
Breakfast and lunch will be provided. Validated parking available (one per family) in Garage 2 or Garage 16.
Please RSVP HERE
If you have any questions, please contact: Cindy Power at firstname.lastname@example.org