Please join us the for the 8th annual A Rare Affair. This year the Rare Affair crew is mixing things up with a crawfish boil at Karbach Brewing Company. All proceeds benefit histiocytosis research at Texas Children’s Hospital. Click HERE to view ticket prices and sponsorship packages. Please also use this form if you prefer to register for Bugs & Brews by mail. Otherwise, please use the online event registration by clicking HERE. Thank you for your generous support. Together we will fund a CURE.
The Histiocytosis Program, at Texas Children’s Hospital in Houston, is the largest Histiocytosis clinic in the world. The program is led by Doctors Kenneth L. McClain and Carl E. Allen. In 2012 TXCH kicked off the Spit For A CURE campaign. Their goal is to enroll 500 triads into the campaign - the Histio patient, the mother, and the father. Any Histio Warrior, child or adult, who has or has had any form of Histiocytosis, and can obtain samples from their parents, is encouraged to participate. As of March 2016 more than 250 Histio families have participated. All that is required is a small spit sample and completed consent and history forms. By analyzing and comparing genetic information, they hope to identify and uncover the inherited risk factors in all Histiocytic diseases. It only takes about 45 minutes to fill out the forms and to prepare the samples. To request a sample kit be sent to you, please email your contact and mailing information to Linna Zhang at firstname.lastname@example.org