Meet the Advisory Board
A degree in Organizational Development and Management helped lay the ground work for nearly 12 years of charitable management, focusing on both the establishment and growth of a variety of non-profit organizations. The organizations and roles have varied from Lutheran Women’s groups, a childhood oncology non-profit group, to large Washington, D.C.-based Coalition for Medicare Secondary Payer reform. Being a founder of multiple non-profit organizations yielded the tools to help Katie launch The Histio CURE Foundation.
Katie’s daughter was diagnosed with LCH in 2007 and has had four different courses of chemotherapy, resulting in first hand experience of the extreme need to find a cure for histiocytosic disorders. Besides focusing on charitable work, Katie holds a professional leadership role with a national organization. Most importantly, Katie is a mother of two young girls.
Toby lives in the The Woodlands, Texas with his wife Billi Jo and daughters Tatum and Brooke. In the summer of 2003, Brooke was diagnosed with Hemophagocytic Lymphohistiocytosis (HLH) at the age of 18 months by the doctors at Texas Children’s Hospital. Shortly after, Brooke began the chemotherapy protocol which failed to reverse the disease. The day after Christmas that same year, she received her bone marrow transplant at Texas Children's Bone Marrow Transplant Clinic from her older sister Tatum, who was a brave 4 year old at the time. With God’s blessings, Brooke responded well to her transplant, which supplied her with a new autoimmune system and newfound health.
Toby and Billi Jo have been active supporters of Texas Children's and in helping raise monies and awareness for a cure of histio diseases through research donations. Toby is a graduate of Missouri State University and works in sales for a national spirit and wine distributor. Toby and Billi Jo have been on the planning and steering committee for The Rare Affair Annual Wine Dinner held around Rare Disease Day in Houston every February and founded the Hike for a Cure Texas event in March of 2012. In addition to volunteering time to The Histio CURE Foundation, he enjoys spending time with his family, playing golf, skiing, and scuba diving. The Hausman’s have lived in Houston for 11 years and are proud to represent the HCF.
Michael lives with his wife, Leslie, and their son, Ian, in Houston where he is a Senior Attorney with Thompson, Coe, Cousins & Irons, LLP. In 2001, his infant daughter, Sydney Salem Golding, died from a rare form of histiocytosis known as systemic Juvenile Xanthogranuloma (JXG). Since that time, Michael has worked to promote disease awareness, education, fundraising, and parent support for the histiocytosis community. He founded the Sydney Salem Golding Fund which organized an international patient/family/physician histiocytosis meeting (THE BIG MEETING) and supported numerous histiocytosis and fundraising events across the country (including Hike For A Cure). Michael also helped found and served on the parent advisory board for the Histio Heroes Research Fund which supports the Histiocytosis Research Program at Texas Children's Cancer Center. He now looks forward to the opportunity for advancing the progress of histiocytosis research through The Histio CURE Foundation.